Summer? Is that you?

Memorial Day weekend means the unofficial start of summer!  Where has the year gone?  I was just thinking yesterday that this time last year I was pregnant.  Ah what a whirlwind its been!

Its been a day since our last post - I've just really been enjoying my time with my little girl!  And, I am not the only one! We are all hugging all over Miss Finley - I am sure she thinks we are all crazy.

There have been so many things over the last couple of days that have me smiling.  Here are a few (in no particular order).

1) My peonies.  I always forget about these every year - for some reason the man who lived here before us planted them on the side of the house - so I rarely see them (yes, I know - we can transplant them -I don't exactly have a green thumb) - this year I remembered to clip a couple after they bloomed.  Nate is however afraid that they have ants on them and he won't go near them!


2) I love that Nate considers his underwear his wardrobe - he usually wears nothing else around the house and he fibs and says "these are wet.  I had an accident" so that he can pick a new pair.  We also have a morning ritual where he sits on his bed with ALL of his underwear and chooses the lucky pair for the day.  Then he chooses a couple of back ups "in case he has an accident".  These usually become the alternate pairs he switches in to throughout the day.

3) The potty chair. Nate takes the words "porta potty" to a new level.  He carries his potty chair all around the houses with him so that he can sit on it and go to the bathroom yet continue doing what he's doing.  I am sure some of you think its a bad idea for us to let him do this - we figure its one of those battles we choose not to fight.

4) A good bra.  I bought a new bra yesterday - a non-nursing bra - I am SO sick of nursing bras (although I am still pumping).  Its amazing what a new bra (non-nursing) can do for a girl (sorry - may be TMI for some : o )

5) The weather.  I don't really need to say much about this but I couldn't have ordered better weather than we've had this week.  Mother Nature had a special coming home present for Finley : o )

6) Big brother love.  This kid loves his baby sister so much and is so happy to have her home.  Nate has had a little spring in his step since Finley has been home and takes every chance he can get to be with her.  He loves to be helpful - give her toys, cover her up when she's laying down, get her some "majamas" you name it, he's all over it.

7) Babies + sunglasses.  Finley and I have been on a couple of walks this week and she loves to have the canopy of her stroller open - but she squints a lot when the sun is out.  Girlfriend got some new sunglass yesterday.

8) My cleaning ladies.  Boy was I happy to see these guys this morning.

9) S'mores.  We have a date with our fire pit this weekend!  Graham crackers, Hershey bars and marshmallows (burnt please!) here I come!

10) Finley's "Miss America" wave.  Finley does this thing with her hands that makes us smile every time.  Typically she holds her paci in one and and rotates her wrist around in circle so as to spin it if you will.  The reason we love this though is because she holds her other hand in the air at the same time and simultaneously spins the other hand.  She does this with other things too - sometimes she simply gets so excited and holds both hands out front and open and closes her hands and spins them and really works it out.  We LOVE this.  We call this her Miss America Wave.



Wishing all of you a wonderful, Happy Memorial Day weekend!

Friday, May 28, 2010 | |

 

3 comments:

mary nunez said...

I love to hear and see how happy finley is at home! the picture of nate and finley is SO sweet I love it! hugs tracy!

May 28, 2010 at 12:46 PM  
Anonymous said...

So happy for you all, hope you have a relaxing weekend! Congrats on the new bra....makes you feel like a brand new woman right? Ha!

May 29, 2010 at 5:48 PM  
Evelyn said...

Forgot to sign my post...

Hugs to you all,
Evelyn

May 29, 2010 at 5:49 PM  

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Finley's Medical History

Born on 8/8/2009 - Finley is taken to Children's Memorial Hospital via the transport team 12 hours after she is born.  She is having trouble breathing and is turning blue.  She is immediately admitted to the NICU.

8/9/2009 - Finley is diagnosed with Tetralogy of Fallot, a congenital heart defect and laryngomalacia, a condition that causes her to aspirate whatever she swallows in to her lungs.

8/21/2009 - Finley has open heart surgery to place a Blalock Taussig shunt to help facilitate proper blood flow.  When she is older, she will require a full repair of her heart.

9/10/2009 - Finley is released from the NICU.  Because of her laryngomalacia and reflux, she is fed 100% through a nasal gastric tube.

9/14/2009 - Finley is re-admitted to the hospital for an infection in her surgical wound.  Finley's genetic test comes back - she is diagnosed with CHARGE Syndrome.

9/15/2009 - During a CT scan to assess the infection, the doctors notice something strange on her CT.  It appears Finley has a malrotated bowel and will require surgery.

9/23/2009 - Finley is examined by the opthalmologist and she is found to have colobomas, a condition common with CHARGE Syndrome, in both eyes.  The degree of her visual impairment is unknown.

9/30/2009 - Finley has the Ladd's Procedure to correct the malrotation and also has a g-tube placed.  

10/7/2009 - Finley has a sedated ABR to check her hearing.  She has a mild hearing loss in her right ear and a moderate to severe loss in her left.  Her loss can be at least partially corrected with hearing aids.

10/8/2009 - Finley is supposed to be released from the hospital today but she has been having low blood sugars.  The endocrinology is called in to evaluate her.

10/29/2009 - Finley is finally released from the hospital with a unconfirmed diagnosis of hyperinsulinism.  Actual diagnosis requires fasting blood tests - because of her heart condition, it is not safe for her to fast.  She needs to have her blood sugar tested every three hours and we are taught how to administer an emergency glucagon injection in case her blood sugar gets to low.

11/1/2009 - Finley requires emergency injection because she cannot sustain her blood sugar.  She is taken to the local ER and transported via the transport team to Childrens Memorial.

11/10/2009 - Finley is discharged from the hospital on a 24 hour continuous feed.  We add polycose to her milk to help her keep her blood sugar at an acceptable level.

11/22/2009 - Finley is taken to the local emergency room with a bad cold - she is having trouble breathing and her oxygen saturations are low.   She is transported via the transport team up to Children's Memorial.

11/25/2009 - Finley is released from the hospital - just in time for Thanksgiving.

12/8/2009 - Finley is taken to the local emergency room for observation - she has a bad cold.

12/21/2009 - Nate is chasing the dog and the dog runs in to Finley's IV pole, knocks it down and pulls out her g-tube.  She is taken to the ER at Childrens to have it put back in.

2/10/2010 - Finley is admitted through the ER at Childrens - she has a bad cold again.  Oxygen saturations are low and breathing is labored.

2/13/2010 - Finley is released from the hospital.

4/17/2010 - Finley is taken to the ER at Childrens - she has pus draining from her belly button.  They suspect a urachal cyst - they send us home with orders to return on  Tuesday (during our scheduled visit) for an abdominal ultrasound.

4/20/2010 - Finley is admitted to Childrens for an overnight stay.  She will have a swallow study and abdominal ultrasound on Tuesday and a CT and sedated echocardiogram on Wednesday which will require anesthesia.

4/21/2010 - The anesthesiologists have trouble intubating Finley, so they call in her ENT to have a look at her.  He observes that her airway is 75% closed off - partially due to scar tissue from previous intubation and partially due to an infection.  The diagnosis is subglottic stenosis and may require her to have surgery on her airway.  She is immediately admitted to the PICU and put on a 24/7 breathing treatment and antibiotics and steroids to help reduce the inflammation.

4/26/2010 - Finley is well enough to be taken off of all oxygen.  Immunology and Infectious Disease are called in to examine Finley because the culture of her throat are growing staph and strep.  Infectious Disease is trying to figure out what could have caused her infection.  Immunology labs will be drawn to determine if Finley has an immune problem which sometime occurs with children with CHARGE.  This is the second significant infection she has had since she was born.

4/27/2010 - The lab calls to say that they mis-read Finley's airway culture.  It's not growing staph - its only growing strep.

4/28/2010 - Immunology labs are back and don't show anything significant.  Finley's lymphocyte counts are low but that isn't unusual for a child who is fighting an infection.  The doctor wants to re-examine her before her first birthday.  In the meantime she cannot have any live vaccines.

4/29/2010 - Finley is discharged from the hospital.  The ENT will do a bronchoscopy before her heart repair surgery to determine next steps on her airway issue.

5/11/2010 - Finley has open heart surgery to repair her heart.

5/17/2010 - Finley begins to show signs of infection which is later identified as a urinary tract infection.

5/25/2010 - Finley is discharged from the hospital.

5/30/2010 - Finley goes to the ER at Childrens because of fussiness, sweating, heavy breathing.  And echo later identifies that the pressure gradient around Finley's pulmonary valve is an astounding 90%.

6/1/2010 - Finley is admitted to Childrens to try a medication called Propranolol to help ease the pressure in her heart.

6/2/2010 - The Propranolol brings the pressure in Finley's heart down from 90% to 50%.  Finley has a positive test for C. difficile which will require antibiotic treatment.

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