Today, Finley and I spent the day today in the ER at Childrens.  She woke this morning around 4 am and was fussy, sweating profusely and breathing pretty heavy.  All things that are not normal for her.  She was pretty inconsolable and so I decided to run out to Jewel to get some Motrin (I had to throw ALL of my Motrin and Tylenol away because of the recall).  I called the cardiology fellow that was on call on my way to find out the correct dose to give Finley.  She was concerned, and told me that if the Motrin didn't make her 100% better, to bring her to the ER - that they didn't want to take any chances.  After the Motrin, Finley seemed better - for about 20  minutes.  Then she started crying again, and wouldn't stop, and so we packed up and headed to the ER.  She fell asleep on the way there and of course, when we got in to the ER - she was all smiles!

She did great while we were there - they drew blood, took cultures (blood and urine), did a chest xray, echo and EKG.  All of her labs came back normal, although they did show she was slightly dehydrated so her cardiologist (who happened to be on duty today) stopped one of her doses of Lasix (diuretic) and her Aldactone.  Finley was sleeping when the technician came in to do her echo, and so while she was only supposed to do a limited echo, she ended up doing a more extensive one since Finley was so cooperative and since Finley had a fit during her echo before they she left the hospital and they were unable to finish it.  Her echo showed that she has a lot of pressure (90%) around her pulmonary valve.  Based on what I could gather, it sounded like the valve might still be too narrow (although some extra pressure is common post surgery).  So what does this mean?  Well - it could mean that Finley may need another surgery to correct it - either a catheterization or perhaps another open heart procedure.  Both of which we don't even want think about entertaining.  The other option is to wait a bit to see if the pressure begins to subside.  Our cardiologist, Dr. Lay, is going to talk to Finley's surgeons on Tuesday to see how they want to proceed.  Obviously we are very nervous about this.  Dr. Lay said though since Finley seemed to be fine otherwise, there was no need for her to stay at the hospital until she had a chance to talk to Dr. Backer and Dr. Russell - her oxygen saturations were good while we were there (100%!) and she was in a pretty good mood.  Dr. Lay said the fussiness could have been because of the extra pressure or she just might not be feeling good.  Since her labs and everything else looked good - we went home.

Since we've been home, Finley has been very sleepy.  She had a two hour nap and when she woke, she vomited a little and had some diarrhea.  I am hoping perhaps that she has a little bug that is just working its way out.  The thing about having a special needs child though is that the little bugs - that suck regardless of "special needs" or not - are a WHOLE lot more nerve wracking in this situation.  Its funny though because we do tend to automatically go to the worst case scenario when something happens because every issue we have tends to be so complex.  That is why we were so happy when Finley's post surgery infection 'only' turned out to be a UTI.  And so I guess we wait.

In the meantime, mommy is going to have a glass (maybe two) of wine because my run didn't manage to help me unwind.  Please keep Finley in your prayers.