Happy Weekend!
Its been a couple of days since our last post - that is primarily because Finley came down with a tummy bug overnight on Thursday so I was up all night with her vomiting. She started at midnight and was pretty much non-stop until 4 when she took a little nap and then woke again at 5:30am and vomited again. Normally, all of this vomiting would have been bad news as previously had it been virtually impossible to keep Finley's blood sugar up if she vomited - even just one time. This time, we had quite the opposite problem - he blood sugars were too high. Normal range is 70-110 - hers got as high as 180 - which is pretty much off the charts for Finley! We aren't used to HIGH blood sugars in this house - in fact, I had tested Finley before I went to bed on Thursday night and she was 165. I turned her pump off for 15 mins and retested her and she'd gone done to 143 - which, since she was sleeping I figured was okay. So when she woke up sick, I was unsure, since we have no experience with HIGH sugars - if the fact that her blood sugar was high was what was causing her to be sick. It was sort of funny because when you have a child who is as medically complex as Finley is - you automatically think its got to be attributed to one of the other problems, a complications or something - the thought never really entered my mind that she might have genuinely caught a little tummy bug. I am still not totally convinced that is what it was - but all signs at the moment are pointing in that direction as she had perked up by the afternoon yesterday and is as good as can be this morning. So in case you are keeping score - this tummy bug was 'normal' thing number two for Finley this week (first was the tooth). It sure would be great if we are getting to the point with this journey of ours that we are just having 'normal' parenting moments for a while! (As a side note, I will say though, I did enjoy the fact that administering pedialyte to a child with a g-tube is MUCH easier than trying to get a child to take it orally!)
We had a nice visit from my mom and my two beautiful nieces yesterday. They were kind enough to come and entertain Nate because we had an endocrine appointment at 10 am. The last endocrine appt I brought Nate to - lets just say he wasn't on his best behavior and his antics included taking off his shoes and denouncing the snack that the nurse was kind enough to bring for him (he was complaining he was hungry and thirsty and when the nurse brought him animal cookies and juice he said , "BLAH! I don't like THOSE cookies." Given all of the craziness in our lives - I hadn't seen the girls in a while (which I hope will begin to change soon!) and when I came down the stairs and saw Gabi standing there - I had to do a double take because she looked exactly like my sister (Tammy). I mean, she has always been a little clone of Tammy but even more so now - she and her sister Kassidy are just growing so fast. Gabi was like a little mother hen with Finley and stayed by her side all day long, playing with her, etc - it was adorable and I think Gabi certainly had a future in babysitting!
Nate was so thrilled to have the girls here to play with - he was so wound up, I think he was actually scaring Kassi a bit. He was up in her face yelling "BOO" or saying, "You can't get me!" and trying to get her to chase him. It was a lot of fun. Our endocrine visit went well - the doctor said that Finley's high blood sugars overnight could have been an insulin response to her being sick - but also attributed to the fact that her hyperinsulinemia seems to be correcting itself post surgery (like we hoped it would). As I previously mentioned, a normal range is 70-110 - we had previously struggled to keep Finley in that range and the only way we could do it was with adding polycose to her feeds. We had previously been adding 1 tsp per ounce and yesterday we cut that back to just under 1/2 tesp per ounce and we increased her rate from 30 ml/hr to 35 ml/hr to account for the calorie loss. So far she is doing great!
And so this weekend I think we are going to focus on getting some miscellaneous things done around the house that have been bugging me for a while - like touching up the spots on the ceiling in my bedroom that I painted - like two months ago. Or changing out those light bulbs in the can lights in the den (the thought of lugging the ladder in the house is unappealing to me : o) I am also going to try to get Nate transitioned from the potty seat (which I know he doesn't need anymore) to using the regular toilet. I think its time to nip this....
And here are a couple of Finley's 10 month birthday pictures...
Finley's Medical History
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June
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- Special Day
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3 comments:
great pics of the kids! i will be sad to see the funny potty pics not post anymore though! haha! we start back up at swimming today too - fingers crossed for both you and i! (hey and we are painting ceiling too this weekend) :o)
enjoy!!! Liza
love those pictures she looks like a big girl and nate so funny in his potty chair.
I, like Liza, will be sad to see the potty chair pictures disappear. They always give me a good chuckle and remind me that life doesn't have to be so routine. I love the recent one of him sitting at the coffee table with this hand on his head, it appears like he is really concentrating on something!
Glad to hear Finley is feeling better. She is such a beautiful strong girl!!
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